December 24: Today is a treatment day for Marcus (lumbar puncture) and he has no acupuncture, so we slept in (or tried to - nurse came in at 7am to check his temp and 3 more people came to the door before 10am, wanting to change sheets, clean room and doc to ask questions). Lucy came by to take lunch orders, I'm getting Chinese food and Marcus is getting KFC, hopefully it will get here before 11:30 because he can't eat after that. Nurse is starting his IV right now (BP:140/99) April and Josh invited us to go to the hotsprings (40 min away) with them tomorrow morning, but Marcus has treatments until 2pm tomorrow so we had to decline.
1:50pm: Marcus just got out of his lumbar puncture (BP: 140/87; pulse 81) he had a valium and is woozy.
Had an interesting Christmas Eve dinner:turkey and dressing, sushi and noodles, tacos and beans, mac-n-cheese and cake. Marcus is doing very well, just a bit of a backache.
December 25: Merry Christmas! Marcus' back is still sore today. I fixed pancakes for breakfast this morning - that was an adventure! Lucy gave us our schedule for next week - they changed it a little. Instead of having a retrobulbar on Wednesday, he's going to have another lumbar on wednesday and a retro on friday. Marcus' back has been hurting him a little. I gave him some crushed up ibuprofen in his applesauce. Spoke with his parents and mine, wished them a Merry Christmas.
April and Josh called when leaving the hotsprings wanting to know if we wanted to join them for dinner at the Doubletree. It was still early (4:30) so the buffet wasn't out yet. so we ordered off the menu. Marcus got a ribeye - said it wasn't as good as the steak at either the holiday inn or the UNDC coffee house. I had a tuna steak, which was pretty good except it had a lot of pepper. We're thinking about staying there next weekend just to get away.
December 26: Started last night - a stuffed up and runny nose. Not any better this morning, took some pseudoephedrine and ibuprofen as I'm afraid I might be running a fever. Gonna relax and not go outside today.
Haven't felt good all day. Marcus' back is better, but he's had a bad headache all day and a mild fever (37.5 C). Have done nothing but read and watch movies all day. Marcus slept. I started mama's socks.
December 27: Still don't feel great today. Went to Lottemart to get some juice. Ate at KFC and got some McDonalds coffee. Marcus is feeling 100% better. He gets another IV treatment on Wednesday and his first retrobulbar on Friday. Josh gets his last treatment (IV) today and they leave on Wednesday. Ashlynn gets her first lumbar treatment today. Poor kid was puking earlier (not sure why) but it doens't look like they are going to postpone treatment. Elizabeth and her parents also leave this week, but there are supposed to be 2 or 3 more American families arriving before we leave. Marcus' doctor wasn't here today but we're gonna talk with her tommorow about the possibility of getting a 2nd retro - but we may have to pay for an extra treatment for that to happen.
December 28: Feeling slightly better so far today. Marcus gets his third treatment, an IV, tomorrow at 1:30. Today we were lazy again. April and Josh leave tomorrow, as well as the Venezualan people. We went with Josh and April to the Doubletree to eat again.
Ashlynn was sick earlier, but seemed to be feeling better towards the evening.
While we were sitting in the common area, a Chinese boy from upstairs peed on a fake plant in the corner of the room and also behind the nurses station!!
December 29: Marcus got his 3rd stem cell treatment today (IV). April and Josh left today (as well as the Venezualans). They gave us the pads off their bed, as well as excess foodstuffs. I made chocolate peanut-butter-chip cookies. Delish! I decided to make spaghetti for dinner tonight (I actually remembered to thaw out the meat). I used Hunts spaghetti sauce out of a package. I've never used that brand before. It wasn't great. Kinda sweet and watery.
December 30: After going to the OT room for electrowave today (Owen is on vacation, so Forrest has been doing Marcus' therapy) he went to get his IV taken out. But his doctor came by and told him to leave it in because he has another treatment tomorrow. This is all well and good, except he hasn't had a shower since Tuesday night, so we're gonna have to figure out how to give him a sponge bath without getting his right hand wet.
I went with Sherry and Susan to get a massage. It was interesting. The back and shoulder part was really good. The stomach part we weird. And the whole experience was verging on pain part of the time as they used their cupped fists to tap you with, making a popping sound.
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